Eosinophilic esophagitis

If you are dealing with this disorder, can you please contact me? I would like to hear your story and treatment experiences.

Basic info...

I was diagnosed several years ago but have stalled with treatments. I need to return to the doc to try and map out a new treatment plan but I want to go armed with as much information as I can. Our first plan was to attempt to eliminate my environmental allergies with shots. I received these regularly for two years. Unfortunately, I was in the 5% the treatment does not work for. I was tested for food allergies but only via skin prick testing. From my reading, I'm not convinced that it's the best way to test for food.

When my symptoms flare up, they are usually accompanied by periodic spasms which make eating more painful. This is a separate condition and I have not read about the two being linked but they seem to be for me. Cold foods, hot foods, and whole foods seem to set this off but when it's really bad, most anything will.

Currently, I've noticed that soft (often highly processed) foods are least irritating. Unfortunately, they are not the healthiest for me and lead to decrease in energy and increase in calories! I have fewer symptoms when I eat cereals and crackers. Consequently, I eat a lot of those to the detriment of my nutrient intake. There is also a ton of junk food that feels better going down but is terrible for me (such as ice cream, cake, etc.).

Suggestions or information on any of these issues would be appreciated.
Posted on January 18, 2011 and filed under "Eosinophilic esophagitis".